Probably should write this more often

I have finished my degree got a place on a masters degree starting in the autumn and everyone here is still alive, Matts done his options for gcse and is going into year 10 in sept – I can only foresee problems myself as he struggles when he can’t get things right, gets frustrated and then loses it.

That reminds me Matt started attending Saturday Art Club at Cornwall about 18 months ago he loves it. School refused to take him on their Alton Towers trip because of safety issues yet he’s been to London without us twice with Saturday art club with no problems at all- think that says a lot about the school. It’s the best we could find that would take him so what can we do?

On Saturday we are going on holiday with a hope of seeing my older children and my two grandchildren. Matt doesnt want to go, he doesn’t like his routine changed and our holiday to Menorca earlier this year was miserable in some ways as he refused to leave the hotel room.


Science homework and meltdowns.

anyone who has parented teenage boys will know getting them to do their homework is never and easy task and when they have Aspergers oh boy that puts a whole new spin on things.

last year when Matt was attending the Ftee Catholic School they were very understanding about homework and realised that a full day of school was a big enough challenge without having to go home and do homework too. Indeed Matt often falls asleep as soon as he comes in from school, I can only imagine this is because he has had to work so hard at fitting in all day long plus two stressful bus journeys there and back. Unfortunately Matt’s science teacher gives homework and the school issues punishments by degrees known as C1 C2 andC3 C3 being detention. Now both my boys are very nervous about receiving any of these punishments and they see them as a threat held over them for any misdemeanour. Matt was set science homework which he clearly couldn’t manage, he brought it home and fretted about it for days until yesterday when he completely lost it-lying prostate on the sofa refusing any help and thrashing his limbs around he had lost the plot.

When teachers set homework I appreciate they have to give it to the whole class but sometimes reasonable adjustment needs to be made ( difficult for time strapped teachers)

this morning I sent in a note explaining the above but guess what Matt didn’t hand it to the teacher and he didn’t get a punishment because the teacher had forgotten to give him the worksheet!!!!

so a meltdown for nothing .. And still no homework done and we still have to pick up the pieces

I never like February

So since I last wrote everyone has had a horrible Lurgy, high temperatures snot etc . Frustrating to just have to sit around feeling like poo while the house gets more and more untidy around you. ( not helped by bring the only female human being here)

Following on from my last post Matt my son is quite settled at the moment but there are always little things that tip him over and we have to be on the look outfit this. Last week the school rang because Matt had upset a girl who travels into school on the same bus as my boys do, this young lady in question was very upset because Matt just doesn’t want anything to do with him and she clearly wants to be friends or more with him. ( she asked him to be her boyfriend) – bless. We tried to explain all of this to the school and I think they understood as no further action was taken but it’s always there the knowledge that your kids not quite the same as the others, doesn’t fit in or have many friends and you know ( and people tell me) my boy is a lovely funny very bright young man. I can’t say I always feel enthusiastic about his differences when I’m physically dressing him for school every weekday morning, he’s taller than me and going through puberty so his dignity is also an issue even if Iam his mum.

so this evening I’m sitting on my rather worn out but lovely Ercol sofa thinking about my Uni project that has to be in next week, have I washed the kids uniforms, should I send Ross ( Matt’s younger brother ) to school tomorrow as he’s still running a temperature but wants to go and wondering if when I wake up tomorrow I will feel better ? I hope so I’m a grumpy patient and we are disappearing under all the mess!!

Four years and a different County

A lot has happened since I posted my one and only post. We moved to Cornwall and Matt was deemed “too bright ” for a special school, he now attends a mainstream secondary school in Hayle a town around 6 miles from where we live. The journey to this point hasn’t been straight forward, when is it ever? When we first moved to Cornwall two recommended secondary schools told us us they couldn’t meet Matt’s needs ( in other words they had seen his statement & no thanks) Eventually by October 4 weeks after everyone else had returned to school we found a place in a local free school( which happened to be Roman Catholic) things were up and down, I would say it’s pretty tough being a square peg that everyone’s trying to fit into a round hole, but we worked things out with the help of a fantastic Senco.. Unfortunately the School was losing money and after 10 reasonable months we discovered it was to be closed and the children transferred to a large local school with zero tolerance. Within a week of the new school taking over Matt had been excluded once and worse was to come. Things came to a head and short of excluding my son I was told take him away and we won’t exclude him, after all you won’t want that on his record. He started at Hayle the next day, we had walked away from the old school with his books, they handed them to us on the way out!

Us… Myself and my gorgeous son. Life with an Aspergers child…what you don’t see

My name is Caro I’m 43 married and live in a beautiful city in Somerset Uk.From the outside our family probably seems pretty much the same as everyone elses however no one should ever judge a book by its cover…..

Let me introduce to my son Matthew was born by elective section a cpl of weeks early because I had obstetric colestasis.Matthew is my 5th child so I imagined I’d got the hang of it by now…little did I know.

He didn’t crawl he bum shuffled he slept all day and stayed awake all night and that was just the beginning